Community groups for neuroblastoma patients
Below you can find various organizations that can give you and your family more information about neuroblastoma and connect you with the logistical and emotional support that can help navigate the challenges of the diagnosis.
Alex’s Lemonade Stand Foundation for Childhood Cancer
Alex’s Lemonade Stand Foundation funds impactful research, raises awareness, and supports families in their quest to help cure childhood cancer.
Arms Wide Open Childhood Cancer Foundation
The mission of Arms Wide Open is to help families, both financially and emotionally, who are suffering hardship due to their child’s diagnosis of cancer, providing them support through the most difficult time of their lives.
Band of Parents
Band of Parents acts as a support network for the newly diagnosed and their families as they go through treatment.
Braden’s Hope for Childhood Cancer
Named after Braden Hofen, who survived a diagnosis of Stage IV neuroblastoma, this organization is dedicated to funding research for new treatments of childhood cancers.
CAC2 Kids’ Cancer Research Foundation
Coalition Against Childhood Cancer (CAC2) is a collaborative network of international nonprofits, corporations, and individuals that effectively advance a variety of childhood cancer causes.
The Carrot Seed Foundation
The Carrot Seed Foundation helps fund pediatric cancer research, clinical trials, pediatric oncology nursing scholarships, and other causes that help families overcome the hardship of battling neuroblastoma.
The Children’s Oncology Group
The Children’s Oncology Group (COG) is the world’s largest organization devoted exclusively to childhood and adolescent cancer research. COG has nearly 100 active clinical trials open at any given time.
Children’s Neuroblastoma Cancer Foundation (CNCF)
The premier source for neuroblastoma information and resources, the CNCF is composed of families like yours committed to finding a cure for neuroblastoma through research, education, awareness, and advocacy.
The Children’s Oncology Group
A database of privately and publicly funded clinical studies conducted around the world. Individuals can search key terms, such as “neuroblastoma”.
End Kids Cancer
The mission of the End Kids Cancer Foundation, is to provide financial support for clinical research and clinical trials that will cure neuroblastoma.
The EVAN Foundation
Established in memory of Evan Lindberg, The EVAN Foundation spreads hope and drives change in the fight against neuroblastoma.
The James Fund/SickKids Foundation
SickKids fights to find new cures and provide world-class care to children with cancer.
Memorial Sloan Kettering Kids Neuroblastoma
The neuroblastoma team at MSK Kids offers you leadership, expertise, reassurance, support, and compassion to give your child the best chance of a cure, a good quality of life, and the best chance for a promising future.
NANT is a clinical trials consortium focused on developing new treatments and biomarkers for relapsed or refractory high-risk neuroblastoma through early phase clinical trials.
The Neuroblastoma Children’s Cancer Society
A dedicated group of volunteers, many of them caregivers to children with the disease, that offer support for families facing this disease. Their mission includes fundraising for research into neuroblastoma and raising awareness of the disease.
Solving Kids’ Cancer (SKC)
Solving Kids’ Cancer focuses on aggressive childhood cancers with low survival rates, by helping accelerate new, next-generation treatments.