Connect with our ambassadors
Our caregiver ambassadors are parents who want to share their personal experiences with DANYELZA. They are passionate about telling their story in the hopes that it may help you along your own journey with your child.
“There are no words for having community like that. Just having the support and knowing that you’re not alone, it’s huge.”
Rachalle is a mother of 2 boys and a former 5th grade science teacher. She has experience navigating relapsed high-risk neuroblastoma and DANYELZA treatment with her son, Luke. Both Rachalle and her husband leaned on their community for support throughout the treatment journey.Watch Luke’s story>
“I’m just proud to be able to help other people. That’s very rewarding. I think we could move mountains. I really do.”
Heather is a mother of 4 who is passionate about sharing her and her tight-knit family’s experiences with high-risk neuroblastoma. Her son, Michael, was introduced to DANYELZA after he did not respond to initial treatment.Watch Michael’s story>
“We as caregivers are our own best resources for knowledge. When we share our stories, we help each other continue to be strong for our children.”
Spencer is a father of 4 with experience in researching and advocating for treatments for high-risk neuroblastoma. When his daughter, Ava, received a relapse diagnosis, finding a treatment plan helped give him and his family hope.Watch Ava’s story>
Connect with us live
Throughout the year, DANYELZA Caregiver Connection hosts educational events to connect you with caregivers who have experience with DANYELZA. See below for details about upcoming events and past events.
7:00 PM EST
Navigating the Start of the Treatment JourneyRegister Now
[Insert event copy here]Read more
Advocating for your child and the DANYELZA treatment experience
Connect with us on Facebook
You can stay up-to-date on the latest news about live events on our Facebook page. Additionally, you can access more tips and insights from our ambassadors as well as engage in conversation with others in the community.
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Connect via email
Join our email list for the latest news about DANYELZA Caregiver Connection. Emails will include updated information about our events, the latest tips from our ambassadors, and other opportunities to connect with the community.